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Cluster 02 — Coordination & Navigation
Conceptual tool — full build reserved for funded development

What comes next, who to contact,
and what exists to help, before hitting rock bottom.

The system does not volunteer information. Carers find grants, assessments, and support groups only by searching independently, often after the moment when they would have been most useful. This tool pushes what is relevant before the carer has to ask.

See the concept → Full framework
"She navigated signposting loops for hours, following contact leads only to be redirected endlessly. She found groups, grants, and assessments only by searching independently, often after the moment when they would have been most useful."
Primary source: carer of a stroke and cardiac surgery survivor, sole coordinator across nine NHS departments

A navigation tool is not a signposting directory.

A directory waits to be searched. It places the burden of knowing what to look for on someone who is, by definition, in the worst position to know what exists.

A navigation tool pushes relevant information at the right moment in the journey, before the carer knows they need it. The difference is the difference between active and passive. Between arriving before the crisis and arriving after it.

Once a resource has been surfaced, the decision and the relationship belong to the carer. The tool makes action as easy as possible, a direct link, a template message, a record that the step was taken, but it does not make the decision for them.

↑ Lift discovery — Enable action
Navigation tool, this

Pushes what is relevant, when it is relevant

Situational awareness of where the carer is in the journey. Resources, assessments, and entitlements surfaced automatically at the right stage, before the carer has to search for them.

Signposting directory, not this

Waits to be searched by someone who doesn't know what exists

Places the burden of knowing what to look for on the person who is least equipped to know. Available in theory. Inaccessible in practice. Reached only after the moment has passed.

Proactive surfacing, then enabling action

Six functions, working together. The tool does not make decisions for the carer, it removes the invisible barrier between the carer and the resources that exist to help them.

🧭
Journey-aware surfacing
Resources, assessments, and entitlements pushed at the right stage, acute phase, marathon, or approaching transition. Not a list. A signal.
🏛️
Carer's assessment prompt
Surfaced proactively when the situation indicates it is relevant, not after the carer has been caring for two years and never knew they were entitled to one.
👐
Local group finder
Condition-matched and location-aware peer support, surfaced at the right stage, before isolation becomes collapse, not after.
📬
Direct action, not a list
A direct contact link where one exists. A template message where it does not. A record that the step was taken and whether it was followed up.
🔁
Next-step chaining
When one step is taken, the tool knows what typically follows, and surfaces it. The carer is never left at a dead end wondering what to do next.
📋
Action log
Every surfaced resource, every step taken, every open item, recorded. Not as an audit trail, but as a map: where the carer has been, and what is still open.

Where Coordination & Navigation is most needed

This cluster activates hardest in the acute and structural phases, when the carer is first building their understanding of what exists, and when they are most at risk of missing what would help them most.

Stage 01
Rupture
High
Stage 02
Immersion
Peak activation
Stage 03
The System
Peak activation
Stage 04
Marathon
High
Stage 05
Fracture
High
Stage 06
Transition
Peak activation
Transition is a peak activation stage for this cluster. Carers are as unprepared for the transition out of caring, through recovery, deterioration, or bereavement, as they were for the transition into it. Navigation tools are as important at the end as at the beginning.

What the tool could look like

The interface below illustrates intended functionality using the same fictional persona as Cluster 01, Michael's carer, six weeks into the acute phase. The left panel shows resources being proactively surfaced at this stage of the journey. The right panel shows the action log, what has been surfaced, when, and what happened next.

MH
Michael Henderson, carer view
Carer: Sarah Henderson · Stroke survivor · 6 weeks post-discharge
Stage 02, Immersion
Surfaced for you now
4 items · based on your journey stage
🏛️
Assessment
Carer's assessment — Kent County Council
You are legally entitled to an independent assessment of your own needs as a carer. Most carers are never told this exists. Requesting one does not commit you to anything.
New for you Immersion stage
Request →
💷
Grant
Carers Trust emergency fund
Small grants for carers in financial difficulty as a direct result of their caring role. Average award £200–£500. Evidence of caring role required — your Cluster 01 record qualifies.
Time-sensitive Acute phase
Apply →
👥
Peer support
Stroke carer peer group — Faversham
Monthly group for carers of stroke survivors, run by Headway Kent. Next meeting 8 July. Three other carers in the Faversham area are currently members.
Condition-matched Local
Contact →
📋
Benefit
Carer's Allowance — eligibility check
Based on the caring hours you have recorded, you may be eligible. Takes 10 minutes to check. Does not affect Michael's benefits. Most eligible carers do not claim.
Likely eligible
Check →
Action log
18 Jun 2026
Referred to discharge coordinator
Tool surfaced. Contact made same day. Follow-up call booked for 22 Jun.
Actioned
15 Jun 2026
Prescription exemption applied
HC1 form submitted. Certificate expected within 14 days. Saves approx. £32/month.
Actioned
12 Jun 2026
Carer's assessment — not yet requested
Surfaced on 12 Jun. No action taken yet. Still open.
Open
9 Jun 2026
Stroke Association helpline contacted
Carer spoke to advisor. Signposted to local group. Group added to next surfacing cycle.
Actioned
Pending
Carer's Allowance eligibility check
Surfaced today. Not yet reviewed.
Not started
Conceptual mock-up only · Fictional persona · Not connected to live systems · Full build reserved for funded development

What this tool must know to work

Coordination and Navigation requires something the other clusters do not, situational awareness. The tool must understand enough about where the carer is to surface what is relevant. Three constraints govern how that awareness is built and used.

01

Lightweight situational awareness

Not a lengthy assessment. Enough signal to know whether the carer is in the acute phase, the marathon, or approaching a transition. The burden of establishing that context must be lower than the burden of not having it.

02

Active, not passive

The tool pushes at the right moment. It does not wait. A resource surfaced six months too late is not a resource. It is a reminder of what was missed. Timing is not a secondary concern; it is the primary one.

03

Decision and relationship belong to the carer

Once a resource has been surfaced, the tool's role is to make action as easy as possible, a direct link, a template, a record that the step was taken. It does not make the decision. It does not follow up on the carer's behalf. It enables.

What this tool will and will not do

Surfacing something useful is only valuable if what is surfaced leads somewhere. A navigation tool that surfaces a resource and leaves the carer at a dead end has added load, not removed it.

These tools will →

Surface proactively Push what is relevant at the right stage of the journey, before the carer has to search for it.
Enable action directly A contact link, a template message, a form, not a link to a page that links to another page.
Record what happened Log every surfaced resource, every step taken, every item still open. The carer always knows where things stand.
Chain to the next step When one step is completed, surface what typically follows, so the carer is never left at a dead end.

These tools will not ✕

Make decisions The tool surfaces options. The carer decides. The tool does not prioritise one resource over another based on anything other than relevance and timing.
Act on the carer's behalf The tool makes action easy. It does not take action. The relationship between the carer and any organisation is the carer's to own.
Surface without a route A surfaced resource with no clear next step is not helpful, it is noise. Every item surfaced must have an actionable path attached.
Replace professional navigation Where a carer needs a named professional, a social worker, a discharge coordinator, a carer support worker, the tool routes to them. It does not substitute for them.

"Does surfacing this resource make the carer's next hour easier or harder? If there is no actionable path attached, it makes it harder."

The design test, applied to every item before it enters the surfacing engine

This tool needs the right partners to become real.

The full build of Cluster 02 is reserved for funded development. If you are a commissioner, ICB lead, or funder working in unpaid carer support, we would like to hear from you.